On data trustees, I think a really good example is Midata, which serves as data trustee for health data. It's a nonprofit, with a cooperative governance structure, based on a Swiss legal framework. But they help set up similar structures in other countries and they were founded by well respected researchers. (full disclosure: I consulted with them for a bit before starting my work at WMF.)

Best,
Jan



On Fri, May 15, 2020 at 7:54 AM Luis Villa <luis@lu.is> wrote:
On Fri, May 15, 2020 at 12:01 AM Dimitar Parvanov Dimitrov <dimitar.parvanov.dimitrov@gmail.com> wrote:
On data trustees: The idea is that citizens should be able to donate their data (including private data in some cases) for the public good. This should be handled by some entity that can guarantee safe and respectful reuse of that data and for it to be used really for the public good and not for private profit.

But while it would be good to have such an animal, there are no clear ideas on how to set it up, who should run it and how it should operate. 

There’s a lot of ideas, maybe no best practices? Happy to introduce anyone interested here to Sean McDonald, who has written a lot on this and is interested in/big fan of Wikipedia (though I think not an editor?) 


Real world example from, of all people, Facebook: 
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