On data trustees, I think a really good example is Midata
<https://www.midata.coop/en/home/>, which serves as data trustee for health
data. It's a nonprofit, with a cooperative governance structure, based on a
Swiss legal framework. But they help set up similar structures in other
countries and they were founded by well respected researchers. (full
disclosure: I consulted with them for a bit before starting my work at WMF.)
Best,
Jan
On Fri, May 15, 2020 at 7:54 AM Luis Villa <luis(a)lu.is> wrote:
On Fri, May 15, 2020 at 12:01 AM Dimitar Parvanov
Dimitrov <
dimitar.parvanov.dimitrov(a)gmail.com> wrote:
On data trustees: The idea is that citizens
should be able to donate
their data (including private data in some cases) for the public good. This
should be handled by some entity that can guarantee safe and respectful
reuse of that data and for it to be used really for the public good and not
for private profit.
But while it would be good to have such an animal, there are no clear
ideas on how to set it up, who should run it and how it should operate.
There’s a lot of ideas, maybe no best practices? Happy to introduce anyone
interested here to Sean McDonald, who has written a lot on this and is
interested in/big fan of Wikipedia (though I think not an editor?)
https://www.cigionline.org/person/sean-mcdonald
Real world example from, of all people, Facebook:
https://www.americanbar.org/groups/business_law/publications/blt/2020/01/pu…
FWIW!
Luis
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